spotlight charity
Cerebral Palsy Alliance Research Foundation
Cerebral Palsy Alliance Research Foundation (CPARF) funds the brightest US researchers to change what’s possible for cerebral palsy.
We are the foremost organization in the world that solely focuses on cerebral palsy (CP) research. CP is the most common lifelong physical disability in the world and it is one of the most underfunded. We will be the ones to change that. We find, fund, and support the researchers who positively reshape what it’s like to live with CP.
TACKLING A CRUCIAL NEED IN THE US
In the US, CP research is currently trapped in a cycle of chronic underinvestment that stifles innovation. The National Institutes of Health (NIH) only allocates around $28 million to CP research annually of their $41.7 billion annual budget, despite CP’s high prevalence and exceptionally high lifelong economic burden. One in 323 babies is diagnosed with CP each year, and related average lifetime costs exceed $1.2 million per person. Less common disabilities with lower lifetime costs receive exponentially more NIH funds than CP, leading to more research for those conditions.
WHAT WE FUND
CPARF will change that through strategic funding directed to five research priorities:
• Early detection and early intervention
• Chronic pain
• Technology
• Regenerative medicine
• Genomics
We support the most promising US-based research in these key areas — the studies that are likely to effect the broadest change, the science that’s positioned to make the deepest impact, and the researchers who are closest to achieving their goals.
We have given out grants totaling $44.4 million to date and robust private funding will help us attract the brightest researchers and advance promising science to the critical clinical trial stage.
CP was once thought of as unchangeable and we’re changing the way people think.
Your generosity can do even more. When you give to our targeted research programs, you will change lives — and you will change what possible means for cerebral palsy.
* Information from https://cparf.org/ Social links below are CPF direct links
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